Stroke and Epilepsy Resources
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This site offers information for the public and professionals about stroke recovery, healthy living, and support groups.
Phone: 888.478.7653
Beyond Stillness is a nonprofit organization that supports people facing illness, stress, and major life changes through meditation, mindfulness, and creative practices. They offer story crafting sessions and opportunities to share stories with others. Explore their site to learn more about gatherings, retreats, and the healing process of sharing your story.
The CDC provides facts about stroke prevention, treatment, and public health programs.
Phone: 800.232.4636
Champion the Challenges is a nonprofit organization dedicated to supporting children with complex medical conditions and the families who care for them. The organization works to amplify family voices, provide and advocacy, and create meaningful experiences that build connection, confidence, and hope for families navigating health challenges.
This group connects people with epilepsy to care, support, and education.
Phone: 800.332.1000
Serving 43 counties in Illinois, this group offers counseling and education for people with epilepsy.
Phone: 312.939.8622 or 1.800.273.6027
Available on Apple, Spotify, Google, and iHeart Radio.
NINDS runs a campaign to teach people how to spot stroke signs and act fast.
Phone: 800.352.9424
Tedy’s Team is a nonprofit organization dedicated to raising awareness about stroke and heart disease, supporting survivors through their recovery journeys, and promoting education and research. Founded by former NFL player Tedy Bruschi after surviving a stroke, the team engages in endurance events like marathons to fundraise and inspire comebacks for those affected by cardiovascular conditions.
Phone: 508.492.5367
Offers stroke education and recovery programs like Stroke Camp and BE-FASTER.
Phone: 309.688.5450
Pediatric Stroke Resources
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CHASA is a 22 year old grassroots non-profit organization dedicated to improving the quality of life for children, teens and adults who developed hemiplegia during childhood. .
No phone number listed
This guide is designed to provide basic information about stroke and stroke care to families of children who have had a stroke.
The IAPS Pediatric Stroke Family Tool Kit is intended to give families guidance on how to navigate this journey after their child has sustained a stroke.
Stroke Support Groups
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Helps locate stroke support groups by region.
Phone: 800.242.8721
This webpage provides a helpful list of stroke support groups and resources for survivors and caregivers, with a focus on emotional support, education, and community connection. It is designed to help families find local and virtual options to support recovery and long term well being after a stroke.
For caregivers and stroke survivors.
Phone: 312.563.2994
Shirley Ryan 外网天堂 - Stroke Support Group
Join us every third Thursday of the month to get together and have meaningful discussions with other stroke survivors.
Each meeting will feature a guest speaker who will touch upon different topics related to stroke and stroke recovery. This group is both in-person and virtual.
Location: Virtual & at Shirley Ryan 外网天堂, 355 East Erie Street, Chicago, IL. 60611; 10th Floor, Auditorium A / B
When: Every third Thursday of each month
RSVP: To sign up, please email Elizabeth Kutz ( ekutz@sralab.org) and Erin Enright (eenright@sralab.org)
Stroke Books of Interest
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Written by renowned stroke expert Louis R. Caplan, this comprehensive guide offers a pragmatic and patient-centered approach to diagnosing, treating, and rehabilitating stroke in both adults and children. It blends evidence-based medicine with clinical experience, using case studies and detailed imaging to support practical decision-making.
This accessible guide for stroke survivors and their families explains the latest treatments and recovery strategies in plain language. It includes insights from top neurologists and real-life stories to help readers understand and navigate post-stroke healing.
Debra Meyerson’s deeply personal memoir explores the emotional journey of rebuilding identity after a stroke. Drawing on her own experience and interviews with other survivors, the book offers hope and practical advice for navigating life after trauma.
Neuroscientist Jill Bolte Taylor recounts her own stroke and recovery, offering a unique perspective on brain function and healing. Her story blends science and spirituality, emphasizing the power of the brain to adapt and recover.
This book provides a thorough overview of stroke types, treatments, and recovery pathways. It’s designed to help patients and caregivers understand the multifaceted nature of stroke and make informed decisions throughout the rehabilitation process.
An interdisciplinary resource for clinicians and students, this book outlines evidence-based practices for treating childhood stroke. It emphasizes collaborative care and includes strategies for improving mobility, speech, and independence in young patients.
This practical guide empowers stroke survivors to take charge of their recovery through goal-setting, therapy, and lifestyle changes. It offers step-by-step advice and motivational insights to support long-term rehabilitation.
Designed for individuals with aphasia and their families, this handbook explains the condition in clear, supportive language. It includes communication tips, therapy options, and resources to help users regain language skills and confidence.
You may also be interested in:
Listing: Stroke Camps (Adults)
This content is for informational purposes only and may not be comprehensive. Information contained does not imply an endorsement from Shirley Ryan 外网天堂, and does not replace the advice of a qualified healthcare professional. See here for further details.
? Shirley Ryan 外网天堂 (formerly Rehabilitation Institute of Chicago)
Henry B. Betts LIFE Center – (312) 238-5433
